Os deficientes e seus pais



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Schaefer, E.S. “A home tutoring program”. Chilrem, março/abril de 1969, pp.- 59-61.

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BIBLIOGRAFIA DOS CAPÍTULOS

CAPÍTLO 3: A Terapia dos Deficientes e dos Pais: Um Resumo da Literatura

James Leigh, B.S., M.S. e Susan Marshall, B.S., M.Ed.

Abramson, P.R.; Grovink, M.J; Abramson, L.M. e Sommers, D. “Early diagnosis and intervention of retardation: A survey of parental reactions concerning the quality of services renders”. Mental Retardation. 15:28-31, junho de 1977.

Anderson, K.A. “The Shopping’ behavior of parents of mentally retarded children: The professional person’s role”. Mental Retardation. 9(4):3-5, 1971.

— e Gardner, A.M. “Mothers of retarded children: Satisfaction with visits to professional people”. Mental Retardation. 11(4):36-39, 1973

Anthony, W.A. “The physically disabled client and facilitative confrontation”. Journal of Rehabilitation. 36(3):22-23, 1970.

Bowe, F. e Razeghi, J.A. “Enabling the disabled through career counseling”. Vocational Education. 54:44-47, outubro de 1979.

Bricklin, P.M. “Counseling parents of children with learning disabilities”. The Reading Teacher. 23(4):331-338, 1970.

Brolin, D. e Gysbers, N. “Career education for persons with handicap”. Personnel and Guidance Journal. 58:258-262, 1979.

Burggraf, M.Z. “Consulting with parents of handicapped children”. Elementary School Guidance and Counseling. 13:214-221, fevereiro de 1979.

393

Christensen, B. e De Blassie, R.R. “Counseling with parents of handicapped adolescents”. Adolescence. 15:397-407, verão de 1980.



Connolly, C. “Counseling parents of school age children with special needs”. Journal of School Health. 48: ll5-117, fevereiro de 1978.

Davidson, P.O. e Schrage, A.R. “Factors affecting the outcome of child psychiatric consultations”. American Journal of Orthopsychiatry. 39(5):774-778, 1969.

DeBlassie. R.R. e Cowan, M.A. “Counseling with the mentally handicapped child”. Elementary School Guidance and Counseling. 10:246-253, 1976.

Dembinski, R.J. e Mauser, A.J. “What parents of the learning disabled really want from professionals”. Journal of Learning Disabilities.10:578-584, novembro de 1977.

Fallendorf, G.W. e Harrow, I. “Parent counseling: 1961-1962”. The Volta Review. 72(l):51-57, 1970.

Gardner, J. e Ransom, G. “Academic reorientation: A counseling approach to remedial readers”. The Reading Teacher. 21(6):529-536, 1968.

Gowan, J.C. e Demos, G.D. “The Guidance of Exceptional Children”. Nova York, David McKay Company Inc., 1965.

Gumaer, J. e Myrick, R.D. “Behavioral group counseling with disruptive children”. The School Counselor. 21:313-317, 1974.

Huber, C.H. “Parents of the handicapped child: Facilitating acceptance through group counseling”. Personnel and Guidance Journal. 57:267-269, janeiro de 1979.

Humes, C. “School counselors and PL 94-142”. The School Counselor. 25:192-195, 1978.

Humes, C.W. “A novel group approaches to school counseling of educable retardates”. The Training School Bulletin. 67(3):164-171, 1970.

Kameen, M.C. e McIntosh, D.K. “The counselor and the individualized education program”. Personnel and Guidance Journal. 58:238-244, 1979.

Keirn, W.C. “Shopping parents: Patient problem or professional problem?” Mental Retardation. 9(4):6-7, 1971.

Kronich, D. “Educational and counseling groups for parents”. Academic Therapy. 13:355-359, 485-489, janeiro-março de 1978l.

Lewis, J. “Effects of group procedure with parents of mentally retarded children”. Mental Retardation. 10(6): 14-15, 1972.

Lombana, T.H. “Guidance of handicapped students: Counselor in service needs”. Counselor Education and Supervision. 19:269-275, junho de 1980.

Love, L.R.; Kaswan, J., e Bugental, D.E. “Differential effectiveness of three clinical interventions for different socioeconomic groupings”. Journal of Consulting and Clinical Psychology. 39(3) 347-360, 1972.

394


Marshall, N.R. e Goldstein, S.G. “Effects of three consultation procedure on maternal understanding of diagnostic information”. American Journal of Mental Deficiency. 74(4):479-482. 1970.

Maynard, P.E.; Warner, R.W. e Lazzaro, J.A. “Group counseling with emotionally disturbed students in a school setting”. Journal of Secondary Education. 44(7):358-365. 1969.

McDavis. R.T.; Nutter. R.N. e Lovett, P. “Counseling needs of handicapped students and their parents”. The School Counselor. 29:232-238, janeiro de 1982.

McDowell, R.L. “Parent counseling: the state of the art”. Journal of Learning Disabilities. 9:614-619, dezembro de 1976.

Millman, H.L. “Minimal brain dysfunction in children — evaluation and treatment”. Journal of Learning Disabilities. 3(2):34-40, 1970.

Morgan, S.B. “Team interpretation of mental retardation to parents.” Mental Retardation. 11(3):l0-13, 1973.

Nathanson, R. “Counseling persons with disabilities: Are the feelings, thoughts, and behaviors of helping professionals helpful?” Personnel and Guidance Journal. 58:233-237. 1979.

O’Connell, R.A.; Golden, J.M. e Semonsky, C.J. “Which adolescent stays in group psychotherapy?” Adolescence. 7(25):51-60, 1972.

Opirhory, G. e Peters. G.A. “Counseling intervention strategies for families with the less perfect newborn”. Personnel and Guidance Journal. 60:451-455, abril de 1982.

Ottens, A.J. e Ottens, A. “Crisis intervention as a model for counseling retarded students”. The School Counselor. 29:200-225, janeiro e l982.

Parker, L.G. e Stodden, R.A. “Preparation of counseling to serve special needs students”. Elementary Guidance and Counseling. 16:36 41, outubro de 1981.

Perosa, L,M. e Perosa, S.L. “School counselors’ use of structural family therapy with learning-disabled students”. The School Counselor. 29:152-155, novembro de 1981.

Prescott, M, e Hulnick, R. “Counseling parents of handicapped children: An empathic approach”. Personnel and Guidance Journal. 58:263-266, 1979.

Prescott M.R. e Iselin, K.L.W. “Counseling parents of a disabled child”. Elementary School Guidance and Counseling. 12:170-177, fevereiro de 1978.

Radin, N. “The impact of a kindergarten home counseling program”. Exceptional Children. 36(4):251-256, 1969.

Ray, J.S. “The family training center: An experiment in normalization”. Mental Retardation. 12(1):12-13, 1974.

Seitz, S. e Hoekenga, R. “Modeling as a training tool for retarded children and their parents”. Mental Retardation. 12(2):28-31, I974.

Sinick, D. “Career counseling with handicapped persons”. Personnel and Guidance Journal. 58:252-257, 1979.

395

Sonnenschein. R. “Parents and professionals: An uneasy relationship”. Teaching Exceptional Children. 14:62-65, novembro de 1981.



Stephens, W. “Interpreting mental retardation to parents in a multidiscipline diagnostic clinic”. Mental Retardation. 7(6):57-59, 1969.

Taylor, W.F. e Hoedt, K.C. “Classroom-related behavior problems: Counsel Parents, teachers, or children?” Journal of Counseling Psychology. 21(1):3-8, 1974.

Vance, H.; Finkle, L. e McGee, H.J. “Group counseling with mentally retarded persons”. Personnel and Guidance Journal. 56:348-152, 1977.

Wikler L.; Wasow. M. e Hatfield, E. “Chronic sorrow revisited: Parents versus professional depiction of the adjustment of parents of mentally retarded children”. American Journal of Orthopsychology. 51:63-70. janeiro de 1981.

Williams, D.M.L. e Derbyshire. J.O. “Diagnosis of deafness: A study of family responses and needs”. Volta Review. 84:24.30, janeiro de 1982.

Wolraich, M.L. “Communication between physicians and parents of handicapped children”. Exceptional Children. 48:324.3.29, janeiro de 1982.

Wyne, M.D. e Skjei, P. “The counselor and exceptional pupils: A critical review”. Personnel and Guidance Journal. 48(10):828-835, 1970.

Yura. M.T.; Zuckerman, L.; Betz, M.I. e Newman, S.S. “Parent involvement project”. Personnel and Guidance Journal. 58:290-292, dezembro de 1979.

PARTE V: O TERAPEUTA ENFRENTA O DESAFIO

CAPÍTULO 19: - Auto-Estima. Uma Ponte Para o Aprendizado - Daniel E. O’Connor, B.A. M. A

Axline, Virginia Dibs. In Search of Self. Nova York, Ballantine Books, 1964.

—. “Play Therapy. Nova York. Ballantine Books, 1969.

Brown, George I. Human Teaching for Hunan Learning. Nova York, Viking Press, 1971.

Gordon, Dr. Thomas. Parent Effectiveness Training. Nova York, Peter H. Wyden, Inc.

Gorman, Alfred H. Teachers and Learners. The Interactive process of Education. Boston, Allyn e Bacon, 1969.

Lewis, H.R. e Stratified, H.S. Growth Games. Nova York, Harcourt Brace & Jovanovich, Inc., 1970.

Punkey Dr. William. Self Concept and School Achievement. Englewood Cliffs, Nova Jersey, Prentice Hall. Inc., 1970.

Rats, L.E.; Harmin, M. e Simon, S. Values and Teaching. Columbus, Ohio. Charles E. Merrill, 1966.

396

Schultz, William. Joy. Nova York, Gove Press. Inc., 1967.



Simon, S.; Howe, L.W. e Kirshenbaum, H. Values Clarification. Nova York, Hart Publication Co. Inc. 1972.

Stevens, John O. Awareness. Bantam Book, 1973.

CAPÍITULO 20: - Uma Abordagem Terapêutica Comportamental - Jantes Leigh, B.S., e Jane Ellis, B.S., M.Ed.

Bandura, A. Principles of Behavior Modification. Nova York, Holt, Rinehart, and Winston, 1969.

Becker, W.C. Parents are Teachers. A Child Management Program. Champaign, Illinois, Research Press Company, 1971.

Berkowitz, B.P. e Graziano, A.M. “Training parents as behavior therapists: A review”. Behavior Research and Therapy. 30:291-317, 1972.

Blackman, G.J. e Silverman, A. Modification on Child and Adolescent Behavior. 3ª ed. Belmont, California, Wadsworth, 1980.

Brown, D.G. Behavior Modification in Child, School and Family. Champaign. Illinois, Research Press Company, 1972.

Byrne, R.H. Guidance A Behavioral Approach. Englewood Cliffs. Nova Jersey, Prentice Hall, 1977.

Delbert, A.N. e Harmon, A.J. New Tools for Changing Behavior. Champaign, Illinois, Research Press Company, 1970.

Goodwin, D.L. e Coates, T.J. Helping Students Help Themselves. Englewood Cliffs. Nova Jersey, Prentice Hall, 1976.

Groden, G. e Cautela, T.J. “Behavior therapy: A survey of procedures for counselors”. Personnel and Guidance Journal. 60:175-180, 1981.

Hawkins, R.P. “The functions of assessment: Implications for selection and development devices for assessing repertoires in clinical, educational and other settings”. Journal of Applied Behavioral Analysis l2:50l-516. 1979.

Hall, R.V. Behavior Management Series. Part I: The Measurement of Behavior. Part II: Basic Principles. Part III: Applications in School and Home. H. and H. Enterprises, 1981. (Box 3342, Lawrence, Kansas 6604).

Hayes, S.C.; Rincover, A. e Solnick, J.V. “The technical drift of applied behavioral analysis”. Journal of Applied Behavioral Analysis. 33:275-285, 1980.

Holland, C.J. “An interview guide for behavioral counseling with parents”. Behavior Therapy. 1:70-79, 1970.

Jones, V.F. “Humanistic behaviorism: A tool for creating healthily learning environments”. Journal of School Psychology. 15:320-328, 1977.

Krumboltz, J.D. e Krumboltz, H.B. Changing Children’s Behavior. Englewood Cliffs. Nova Jersey, Prentice Hall, 1972.

397

Krumboltz, J.D. e Thoresen, C.E. Behavioral Counseling: Cases and Techniques. Nova York, Holt, Rinehart and Winston, Inc., 1969.



Krumboltz, J.D. e Thoresen. C.E. Behavioral Counseling Methods. Nova York, Holt, Rinehart and Winston, 1976.

Lovitt, T.C. “Notes on behavior modification”. Journal of Special Education. 15:34-36, 1981.

Martin, G. e Pear, J. Behavior Modification: What is it and How to do it. Englewood Cliffs. Nova Jersey, Prentice Hall, 1978.

Meichenbaum, D. Cognitive-Behavior Modification: An Integrative Approach. Nova York, Plenum Press, 1977.

Mikulas, W.L. Behavior Modification: An Overview. Nova York, Harper & Row, 1972.

Nelson, R.O. e Hayes, S.C. “The nature of behavioral assessment: A commentary”. Journal of Applied Behavioral Analysis. 12:491-500, 1979.

Panyan, M.C. Behavior Management Series. Part IV: New Ways to Teach New Skills. H. and H. Enterprises, 1972.

Patterson, G.R. e Gullion, M.E. Living With Children New Methods for Parents and Teachers. Champaign, Illinois, Research Press Company, 1971.

Reese, E.P. The Analysis of Human Operant Behavior. Dubuque, Iowa, William C. Brown Company Publishers, 1966.

Rosenbaum, M.S. e Drabman. R.S. “Self-control training in the classroom: A review and critique”. Journal of Applied Behavioral Analysis. 12:467-485, 1979.

Sanders, M.R. e Glyn, T. “Training parents in behavioral self-management: An analysis of generalization maintenance”. Journal of Applied Behavioral Analysis. 14:223-237, 1981.

Shelton, J.L. e Meyer, E.M. “Catch them being good: training parents as behavioral engineers”. School Counselor. 25:110-115, 1971.

Smith, J.M. e Smith, D.E.P. Child Management: A Program for Parents and Teachers. Ann Arbor, Ann Arbor Publishers, 1966.

Sulzer-Azaroff, B e Mayer, G.R. Applying Behavioral-Analysis Procedures with Children and Youth. Nova York, Holt, Rinehart and Winston, 1977.

Sulzer, E. e Mayer, G. Behavior Modification Procedures for School Personnel. Hinsdale, Illinois, Dryden Press, Inc., 1972.

Tharp, R.G. e Wetzel, R.J. Behavior Modification in the Natural Environment. Nova York, Academic Press, 1969.

Valett, R.E. Modifying Children’s Behavior: A Guide for Parents and Professionals. Belmont, California, Fearon Publishers. 1969.

Wahler. G.R. e Fox, James J. “Setting events in applied behavior analysis: Toward a conceptual and methodological expansion”. Journal of Applied Behavioral Analysis. 14:327-338, 1981.

Walker, J.E. e Shea, T.M. Behavior Modification: A Practical Approach for Educators. St. Louis, Missouri, C.V. Mosby, 1980.

398


Watson, D.L. e Tharp, R.G. Self-Directed Behavior: Self Modification for Personal Adjustment. Monterey, California, Wadsworth, 1977.

Watson, L.S. Child Behavior Modification: A Manual for Teachers, Nurses and Parents. Nova York, Pergamon Press Inc., 1973.

Wolf, M.M. “Social validity: The case for subjective measurement or how applied behavioral analysis is finding its heart”. Journal of Applied Behavioral Analysis. 11:203-214, 1978.

CAPÍTULO 21: Interesses Especiais na Terapia de Indivíduos Intelectualmente Limitados - Eddie Williams, Ed. D.

Barnard, K.E. e Erickson. M.L. Teaching Children with Developmental Problems. St. Louis, C.V. Mosby Company, 1976.

Hutt, M.L. e Gibby, R.G. The Mentally Retarded Child. Boston, Allyn and Bacon, Inc., 1976.

MacMillan, D.L. Mental Retardation in School and Society. Boston, Little, Brown and Company. 1982.

Olshansky, S. “Chronic sorrow: A response to having a mentally defective child”. Social Casework, 43:190-193, 1962.

Roos, P. “Psychological counseling with parents of retarded children”. Mental Retardation, 1:345-350, 1963.

Rosen, L. “Selected aspects in the development of the mothers understanding of her mentally retarded child”. American Journal of Mental Deficiency, 59:522, 1955.

Smith. R.M. An Introduction to Mental Retardation. Nova York, McGraw Hill, 1971.

Wikler, L.; Wasow, M. e Hatfield. E. “Chronic sorrow revisited: Parent versus professional depiction of the adjustment of parents of mentally retarded children”. American Journal of Orthopsychiatry, 51 (1): 63-70, 1981.

CAPÍTULO 22: Os Deficientes Também São Sexuados - Sol Gordon, Ph.D.

LIVROS


Ayrault, E.W. Sex. Love and the Physically Handicapped. Nova York, Continuum Publishing, 1981.

Blacklidge, V. Sex Education for the Mentally Retarded. San Leandro, California. Mental Retardation Service, 1968.

399

Blum, G.; Blum, B. Feeling Good About Yourself. Feeling Good Associates, 507 Palma Way, Mill Valley. California 94941, 1981.



Cornelius, D.A. et alii. Who cares? A handbook on Sex Education and Counseling Services for Disabled People, 2ª ed. Baltimore, Maryland, University Park Press, 1982.

Featherstone, H. A Difference in the Family — Living With the Disabled Child. Nova York, Penguin Books, 1981.

Gordon, S.; Scales, P. e Evenly. K. The Sexual Adolescent. Belmont, California, Wadsworth, Inc. 1979.

Johnson, W.R. e Kempton, W. Sex Education and Counseling of Special Groups: The Mentally and Physically Handicapped, III and Elderly, 2ª ed. Springfield, Illinois, Charles C. Thomas, 1980.

Kempton, W. Sex Education for Persons With Disabilities that Hinder Learning: A Teachers Guide. Planned Parenthood of Southeastern Pennsylvania. 1220 Sansom Street, Philadelphia, 1975.

Pattulo, A. Puberty in the Girl Who is Retarded. Nova York, National Association for Retarded Children, 1969.

Robinault, I.P. Sex Society and the Disabled. Hagerstown, Maryland, Harper & Row, 1978.

PERIÓDICOS

Gordon, S. “Love, sex and marriage for people who have disabilities”. The Exceptional Parent, dezembro de 1976; pp. 18-21.

— e Snyder, C. “Family life education for the handicapped”. The Journal of School Health, 50(5):272-274, 1980.

__ “Family life education for the handicapped”. In A.D. Spiegel; S. Podair e E. Fiorito, editors. Rehabilitating People With Disabilities into the Mainstream of Society. Park Ridge, Nova Jersey, Noyes Medical Publications, 1981.

— “Sexuality and the disabled”. Australian Journal of Sex, Marriage and Family, 2(4):157-l64, 1981.

PANFLETOS

Dickman, I.R. Sex education for disabled persons. Nova York, Public Affairs Committee, 1975. (Panfleto nº 531)

Gordon, S. Sexual rights for the people... who happen to be handicapped. Syracuse, Center of Human Policy, 1979.

—; Kempton, W. e Bass, M. Love. sex and birth control for the mentally retarded. Planned Parenthood of Southeastern Pennsylvania, 1979.

400

McKee, L. e Blacklidge, V. Sexuality and socialization. A book for parents of people with mental handicaps.



FILMES

All Women Have Periods

Like Other People

Feeling Good About Yourself

These People

SUGESTÕES PARA LEITURA

Para Informação e Compreensão Humana (Naturalmente existem muitas outras fontes — aumente a sua lista!)

AMPUTAÇÃO

Baker, Louise. Out on a Limb. Nova York, MacGraw-Hill Book Co., 1946. - Um trabalho profundo, bem-escrito, sobre o qual vale a pena meditar, graças às suas informações e filosofia.

Russell, Harold. Victory in My Hands. Nova York, Creative Age Press, 1949. – Um documento muito humano, de valor para todos, mais principalmente para aqueles que, já adultos, vêem-se obrigados a se adaptar a uma deficiência.

AFASIA

McGinnis, M. Aphasia Children. Washington, D.C., Volta Review, 1963. - Uma ótima introdução à afasia infantil, contendo grande número de informações.



Barry, Hortense. The Young Aphasic Child. Washington, D.C., Alexander Graham Bell Assn. for the Deaf, Inc., 1961. - Uma valiosa fonte de informação para o tratamento e classificação de um problema complexo.

Myklebust, H. “Aphasia in children — Language development language Pathology”. In Travis, L. editor. Handbook of Speech Pathology. Nova York, Appleton-Century-Crofts, 1957. - Uma explanação clássica, prática e útil. Uma boa introdução.

401

Perkins, William H. Speech Pathology. St. Louis, C.V. Mosby Co., 1971. - Um tanto ou quanto técnico para o leigo, mas uma fonte válida e atual para todos os problemas da fala e da linguagem.



AUTISMO

Park, Clara C. The Siege. An Atlantic Monthly Press Book. Boston, Little, Brown and Co., 1967. - Uma história verídica, bela e informativa, sobre a luta de uma família para compreender sua filha autista.

Rimland, Bernard. Infantile Autism. Nova York, Appleton-Century-Crofts, 1964. - Uma obra clássica em seu campo; bela na forma e muito informativa — um “must”.

CEGUEIRA E VISÃO PARCIAL

Caufield, Genevieve. The Kingdom Within. Evanston, Illinois, Harper & Row, 1960. - Um livro enaltecedor, que reflete uma mente forte e emoções saudáveis. É de utilidade para todos.

Lowenfeld, Berthold. Our Blind Children: Growing and Learning With Them. Springfield, Illinois, Charles C. Thomas, 1964. - Um clássico sobre a deficiência visual, que sempre será um dos livros mais importantes no campo das excepcionalidades. “Antigo”, porém muito bom e atemporal.

Bryan, Dorothy. Guide For Parents of Pre-School Visually Handicapped Children. Springfield, Illinois, Office of Public. Instruction. -Sugestões práticas para os pais de crianças deficientes visuais. Aborda temas como atitudes, hábitos de alimentação e de repouso, mobilidade e capacidade escolar.

Cutsforth. T.D. The Blind in School and Society. 2ª ed. Nova York, American Foundation for the Blind. 1951. - Um livro excelente — outro clássico —, bem-escrito e documentado. Uma fonte de grande valor.

DEFICIÊNCIA DA APRENDIZAGEM

Lewis, R. The Perceptually Handicapped Child. California Association for the Neurologically Handicapped Chilrem, Los Angeles, California 90053, P.O. Box 604. - Problemas de percepção apresentados em termos leigos.

402

Kratoville, Betty Lou. Happiness Is a Thing Called Learning. Houston, Texas, Association for Chilrem with Learning Disabilities. - A história real, sábia e perspicaz (e também informativa e bem-escrita) de uma mãe, seu filho portador de deficiências da aprendizagem e de seu crescimento juntos.



Brutten, Milton; Richardson, Sylvia e Mangel, Charles. Something’s Wrong With My Child. Nova York, Harcourt Brace Jovanovich, Inc., 1973. - Um valioso guia para pais que lutam para compreender e ajudar seus filhos com deficiências da aprendizagem.

Myers, Patricia T. e Hammill, D.D. Methods for Learning Disabilities. Nova York, John Wiley, 1969. - Um livro técnico, mas de inestimável valor, que discute de uma forma breve porém completa as principais teorias referentes ao diagnóstico e tratamento de deficiências da aprendizagem.

DEFICIÊNCIA MENTAL

Murray, Sra. Max A. Needs of Parents of Mentally Retarded Children. Arlington, Texas, National Association for Retarded Children. 1972 (panfleto). - Uma ótima publicação, contendo vasta quantidade de informações, para qualquer pessoa interessada em trabalhar com deficientes mentais e adquirir uma melhor compreensão sobre esses indivíduos.

Katz, Elias. The Retarded Adult at Home: A Guide for Parent. Seattle. Special Child Publications. Inc., 1970. - Uma rara apresentação de algumas das considerações e informações necessárias para viver com um adulto deficiente mental em casa.

Flannigan, P.J.; Baker, G.R. e La Follett L.G. An Orientation of Mental Retardation — A Programmed Text. Springfield, Illinois, Charles C. Thomas, 1970. - Um livro básico que inclui uma visão geral sobre o desenvolvimento, programas especiais, informações profissionais e serviços disponíveis aos deficientes mentais.

Buck, Pearl S. The Child Who Never Grew. Nova York, John Day Co. 1950. - Uma comovente história real sobre o ajustamento de uma mãe à sua filha excepcional. A autora é uma das maiores escritoras e uma das mais importantes mulheres americanas.



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